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Welcome
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Latest News

  • Chronic Intestinal Pseudo-Obstruction Ongoing Genetic Studies
  • Join AGMD'S Monthly Patient and Motility Specific Telephone/Internet Groups
  • AGMD Lexington, MA In-Person Educational Support Group Meets Monthly
  • Rare Disease Day - February 28, 2017
Serving as a Beacon of Hope Since 1991
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Behind the Scenes

 

Making an Impact

 

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AGMD Special Divisions

AGMD understand the individual needs of special groups of people who are impacted by digestive motility diseases and disorders. Because of these unique requirements, we have developed special divisions dedicated to pediatrics, young adults, adults, senior citizens, spouses, caregivers, and families.

Each division is customized to meet the needs of each group.

Pediatric Division

Being a parent of a child with a motility disorder can be extremely difficult. It can be heart-wrenching to watch your child be ill and not be able to make him or her better. It is an emotional roller coaster as a parent deals with finding a doctor, a diagnosis, treatment, and taking care of his/her other children and family responsibilities.

Children may be born with a digestive motility disease or disorder or acquire one later in childhood or as an adult. Feeding issues, nutrition, hospitalization, surgeries, pain and discomfort, constipation, diarrhea, reflux, bathroom issues, and school problems are just some of the challenges that can be present.

Because of the special concerns and problems associated with pediatric patients and their families, AGMD has developed an outreach program dedicated to fulfilling their needs.

Tween

The adolescent is faced with many complex physical, emotional, and social issues. These issues are most unique to the adolescent and tween age groups. While the average adolescent and tween are searching for more independence, focusing on the changes in their bodies, school, peer pressure, self-esteem, increasing assertiveness, and riding through the emotional ups and downs, etc., the motility patient is further challenged because of his/her symptoms and dealing with the every day aspects of living with a chronic digestive illness.

Some adolescents and tweens may feel that they don't fit in because they may have long hospital stays, have to wear tubes, have distended bellies, may not be able to attend school or social events because of their symptoms or inability to eat. Peer may tease or make fun of the patient, which can impact his/her self-esteem. Frequent visits to the bathroom can be embarrassing and concerning to the patient.

They may not be able to eat "normally." This too can be embarrassing and can make him/her extremely self-conscience.

This is a fragile and stressful time in the life of most adolescents and tweens.

AGMD understands the extra challenges that can accompany the patient and his/her family. We provide educational materials, support and resources in order to help patients and their families.

Young Adult Division

The young adult patient faces many issues that are unique to its age group. Problems related to relationships, dating, social activities, school, and jobs are just some of the areas that can be of concern to the young adult motility patient.

Some young adults may feel that they do not "fit in" because they may not be able to wear certain clothes, they may have surgical scars or have to wear tubes and bags, or they may be unable to do many of the activities that their friends can do. They may become extremely self-conscious. In addition, because digestive motility diseases focus on food and bathroom, they may become embarrassed that they must make frequent visits to the bathroom. Because of their inability to eat normally, social issues may come into play. How his/her peers react and how he/she responds can have a strong impact on his/her self image that may carry into adulthood.

AGMD provides its young adult patients with educational materials, support, and resources in order to help this patient population.

Adult Division

Adult patients with a digestive motility disease/disorder are faced with many physical and emotional challenges. Symptoms of the illness can vary in intensity and be unpredictable in nature. The impact of not being able to eat and needing to be near a bathroom can have a profound effect on the patient's life.

Many adult patients do not look ill and therefore, some people may not believe that they are in fact suffering from a motility disease/disorder. As a result of the symptoms and the social impact, the patient may feel isolated and very much alone.

There are many other problems and concerns that the adult patient must deal with on a daily basis. Such problems may include, pain, lack of energy and fatigue, finding a physician and adequate treatment, finances and employment, relationships, self-image, and a having a sense of purpose in his/her life to name a few.

AGMD was started by an adult patient and therefore, there is a deep understanding of the many physical and emotional struggles that many endure. AGMD is also aware that there are many important considerations, which are unique to each gender. As a result, we provide pertinent educational materials and special resources that address the needs of the female as well as the male patient.

Senior Citizen

Many people are unaware of the special needs that senior citizens may have when faced with a digestive motility disease or disorder. In fact, at this juncture, there are no other organizations that draw attention specifically to this special group of motility patients.

Along with the struggles of digestive motility problems, senior citizens are often further challenged by the manifestations of age itself.

Some of the issues that seniors can be faced with may include, a loss of mobility and less activity, being bedridden, taking multiple medications, nutritional concerns, depression, isolation, loss of independence, and a host of other issues, which can all compound the effects of the digestive motility problems.

AGMD strives to highlight the importance of providing for the needs of the senior population affected with digestive motility diseases and disorders.

Special Note: We now hold a Monthly AGMD Digestive Motility Support Group Meeting at the Concord Council on Aging in Concord, Mass.

Caregiver Division

There are few people who would eagerly sign-up for the jobs most caregivers encounter daily ... exhausting, heart-wrenching, confusion, and expensive tasks that can befuddle and discourage even the most optimistic of folks. Yet, with each diagnosis, spouses, parents, children and friends are thrust into a role for which, no one asked - and from which, there is little, if any relief.

Providing real connections, information, motivation, and support, the Association of Gastrointestinal Motility Disorders, Inc. (AGMD), looks with gratitude and admiration on those people who make survivors' journeys a bit easier, and sometimes, simply livable.

We know that platitudes won't cut it. Just saying, "How do you do it?" and moving on to the next topic won't either. So we seek in every way we can, to direct and lift you up in your walk alongside your loved one.

Just reach out and ask us how we can help.

Family Division

Digestive motility diseases and disorders can have a great impact on the entire family unit. When one person is affected, it causes a domino effect within the family.

Worry, anger, bitterness, stress frustration, and anxiety are just some of the emotions that many families endure while trying to cope and " integrate the intrusion of chronic illness into their lives." It is a big adjustment not only in the patient's life, but in all of the family members' lives as well.

AGMD is well aware of the influences that chronic illness can play on the family and we are dedicated to providing families with much needed support.

 

 

This page was last modified on February 6, 2017

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